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Survey to learn the needs of those with intellectual and developmental disabilities

Autistic boy spinning with spinner

The Hawaii State Council on Developmental Disabilities opened a statewide survey to learn the needs of those with intellectual and developmental disabilities.

The survey can be filled in online at https://www.surveymonkey.com/r/HSCDDsurvey. The survey will take approximately 20 minutes to complete. It is confidential and requires no identifying information to complete it. The survey is available now until Aug. 3 and the responses will inform the council and shape how the state of Hawai‘i meets the needs of those with intellectual and developmental disabilities.

“It is our hope that we reach all individuals with intellectual and developmental disabilities in Hawai‘i,” said Daintry Bartoldus, the Executive Director of the Hawaiʻi State Council on Developmental Disabilities. “We want to hear from them, their families and their caregivers about their health, educational and work or employment related needs that are so vital to their quality of life and well-being.”

Those invited to the survey are people diagnosed with and not limited to:

  • Autism spectrum disorder
  • CHARGE syndrome
  • Cerebral palsy
  • Epilepsy
  • Fetal alcohol spectrum disorder
  • Fragile X
  • A genetic defect
  • Down syndrome
  • Intellectual disability
  • Prader-Willi syndrome
  • Spina bifida
  • Williams syndrome

The survey should only be filled out once for each individual with an intellectual and/or developmental disability. The survey link may be shared with everyone who is eligible to take it. Family members, support workers, educators, or caregivers, may assist the individual with intellectual and developmental disabilities in filling the survey out.

For more information, call (808) 586-8100, or email HSCDDsurvey@gmail.com.

 

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