The Center for Research on Women with Disabilities (CROWD) at Baylor College of Medicine has launched of the National Health Information Survey for Women with Mobility Disabilities.
“Access to consumer-friendly health information is so important in addressing the serious health disparities that women with disabilities face. Sadly, there is very little out there in print or on the internet,” said Dr. Margaret Nosek, professor of physical medicine and rehabilitation at Baylor and lead investigator on the project, who also has a physical disability.
This survey is funded by the National Library of Medicine with the goal of developing a fully interactive and searchable health information website and user training program that will promote literacy about reproductive and pelvic health for women with disabilities. Responses from this survey will inform the structure and content of the website in addition to providing data for future research.
Researchers are seeking women with physical disabilities to participate:
- Must be a woman at least 21 years of age
- Have a mobility impairment due to a chronic, physically disabling condition
- Have had this condition for at least one year
- Have access to a computer or mobile device with an internet connection
- Can understand and express herself in spoken and written English
Their goal, with the help of eight community advisors and five independent living centers, is to have at least 500 responses from women of all backgrounds across the country. Recruitment is currently underway. Eligible participants will be entered into a drawing to win a $50 Amazon gift card.